PRESS RELEASE: Medical PTSD Patient Plans Wilmington “Rally for Medical Rights and Safety” October 19

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Medical PTSD Patient Plans Wilmington “Rally for Medical Rights and Safety” October 19

Artist-Educator-Activist Seeks to Improve Envionment for Patients and Providers   

Wilmington DE – October 6, 2022 – Artist-activist Shay Seaborne, CPTSD plans a “Rally for Medical Rights and Safety” at Rodney Square in Wilmington from 11 AM – 2 PM on Wednesday, October 19, 2022. An estimated ⅓ of patients experience healthcare-related harm during hospitalization and nearly 50% are preventable. Seaborne wishes to spread awareness about patient and provider rights and safety, bring together survivors and care providers for support, and “join our voices for greater administrative and legal protections.” Rally updates at www.ShaySeaborne.com/rally. Fellow artist-activist Viva Best, of Martinsburg, WV, will coordinate a collective interactive art experience for participants and visitors, including a healing water ceremony at the rally’s end. Participants and supporters are invited to wear red and to contribute to a community art project to illustrate the effects of preventable medical trauma on our community.

Seaborne is motivated by her own harmful medical experiences that include non-consensual surgery. The seriously injured patient sought accountability and was “stonewalled by a system that prevents resolution and offers layers of protection for the harmful provider, who is free to repeat offend.” Speaking with many others about her experiences, the activist-artist said she “heard too many stories of those who were also harmed and left with no legal recourse.” 

Health professional burnout, “associated with worsening patient safety,” is widely known but ineffectively addressed. Seaborne noted the suicide rate of doctors is twice the national average. “It’s not an individual problem,” she said, “but a systemic issue. Providers chronically face too many demands and lack sufficient resources. They pay the price with their own well-being and their lives.” According to Pamela Wible, MD, “physician suicide is a public health crisis. One million Americans lose their doctors to suicide each year.

The rally offers a variety of presenters, who will relate medical harm stories through spoken word, songs, or art. Attendees will be encouraged to bring their own written words, signed or unsigned, that could be shared with Delaware elected officials. Seaborne envisions something much larger. “I hope this is the beginning of a groundswell,” the activist said. “We, The People, need to end control of medicine by corporate hands and resuscitate its heart, which is the safe and supportive doctor-patient relationship,” Seaborne said. “With our voices of lived experience, we can raise a chorus for policy and legislative change. As vocal constituents, consumers, and providers, we can pressure the legislature and the industry for better medicine for ourselves and future Delawareans.”

—END—

About Shay Seaborne 

Shay Seaborne came to Delaware to crew for KALMAR NYKEL in 2015 after she quit her prior life to go for her lifelong dream of sailing tall ships. A few years later she became a trauma awareness artist-activist in response to disabling medical abuse she suffered after she asked mainstream medicine for help with severe Complex PTSD. No longer able to qualify as sailing crew due to her medical injuries, Shay “decided to stay and fight.” For over two years the Ardentown resident has taught the public and providers about trauma and stress recovery from an Interpersonal Neurobiology-informed (IPNB) perspective. Through the online courses she co-instructs with Imogen Ragone, Shay helps trauma survivors learn how they can build their own dynamic neuroscience-based healing framework. Ms. Seaborne plans a patient safety initiative for the next Delaware General Assembly. With ceramics and watercolors Shay creates outsider/underground art that reflects her lived experience as an extreme ACE Score survivor and promotes neuroscience concepts. Her Lapbook Gallery, “NOT Informed NO Consent,” a short graphic novel-like story that details her experience of non-consensual surgery, will be available for viewing on request at the rally and is also available in digital format.

Shay Seaborne, CPTSD
Artist, Educator, Activist

PeoplesRallyDE@gmail.com

Website: ShaySeaborne.com

Public Facebook Page: Trauma Aware America

Facebook Groups: Trauma Aware America Group  and Patients for Trauma Awareness

Instagram: @shayseaborne_cptsd

Hashtag: #TraumaAwareAmerica

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Letter to DE Medical Licensing Board re Discipline for Non-Consensual Genital Cutting

The Predatory Man is a Monster in DisguiseDear Chairman and Members of the Board,

As you know, in a doctor-patient relationship the professional has the burden of responsibility to perform their duties. This includes respecting the concept of informed consent and the patient’s right to make decisions about what happens to her body.

In Delaware, it seems it doesn’t really matter what [Surgeon’s name redacted to protect the author.] did to me and how it affected my mental and physical health forever. Rather, the question is whether his behavior was outside the standard of care set by the medical board. Informed consent is the standard of care.

Even if we ascribe good motives to a surgeon who performs additional procedures, he should not reach that decision without obtaining consent from the patient. Even if he acted out of the purest of motives, it is not okay. “I do this to you and you figure it out over the course of months” is a violation of patient trust and agency.

The lawyers want you to look at one sentence in the consent form, not at what the surgeon did to his patient. That perspective is one reason Delaware’s patient protections are shockingly weak. Without public accountability, there is virtually no way to recognize a [Surgeon’s name redacted to protect the author.], Earl Bradley, or Larry Nassar until it’s too late. The existing “protections” recently noted to me were that I can ask the next surgeon to tell me in advance and hope they are honest, or “talk to your legislator,” neither of which provides any actual protection. There are few protections, even for you and your loved ones. Filing a complaint will be the closest you can get to accountability or justice.

You can’t fix a malignant narcissist with sensitivity training and a private reprimand is no protection for the women of Delaware. If the penalty is a “letter of concern” he will have two more chances before there’s an investigation. Of course, given the sensitivity of the experience and unlikely chance of any resolution, odds are low another patient would have the tremendous fortitude required to navigate this process, to even first put words to the unspeakable cruelty and its impact on our whole selves and whole lives. Even if she somehow does, he still gets one more chance. Without any mark on his public record, the surgeon can also move his practice to PA, MD, NJ, or any other state, where he would not be impeded.

I strongly urge you to exercise the strictest possible discipline against [Surgeon’s name redacted to protect the author.]’s license for this breach of professional and ethical conduct. It’s important to make a public record of his behavior so other women who want to choose a doctor can understand what he might do to them, too. If you don’t do everything you can to stop him, you’re telling me and all the women of Delaware that we’re not worthy of your protection from egregious harm simply because this abuser wears a white coat.

The lawyers say that due to one sentence in the consent form, I consented to everything. I say I did not consent to tissue removal or external incisions. Please view the accompanying Lapbook Gallery and decide for yourself. It took great courage and effort for me to come forward. I have done everything within my legal power to make it stop. Now it’s up to you. Please, make it stop. Thank you.

Sincerely,

Shay Seaborne, CPTSD

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Public Safety Meeting Presentation: “The Intersection of Public Safety and Mental Health”

Last night, for the first time in many years, I spoke in public. This was at a local public safety meeting coordinated by my State Representative, Larry Lambert, a fine human being. Also present were representatives of our local first responders, as well as our State Senator, Kyle Evans Gay. When it was my turn for the floor, I spoke for just under 3 minutes:

As a person with a mental health diagnosis, I’m particularly interested in the intersection of public safety and mental health. As the Adverse Childhood Experiences Study shows, there is a shockingly high correlation between Adverse Childhood Experiences and all social ills, including violence and criminality.

Adults traumatized as children are especially vulnerable to harm from uninformed responses, as I have experienced on multiple occasions mysekf. Even the mobile crisis unit caused me more problems than it resolved.

As a person with severe Complex PTSD from extreme childhood abuse including trafficking and a year of abduction and torture, I cannot ask for help without recognizing the potential for great harm any time I interact with a public safety representative, doctor, nurse, therapist, or psychologist.

When trauma survivors ask for help we are often put directly on the trauma train to Rockford or Dover, true cuckoo’s nests owned by Universal Health Services, America’s largest mental health hospital chain, notorious for patient abuse.

If you send me or convince me to go to the ER or Rockford, you will be turning me over to places that are not equipped to help me and actually will cause more harm. That’s how it is in Delaware and in America.

The mainstream medical system’s standard treatment for PTSD is Black Box medications and talk therapy that often re-traumatizes the survivor. This treatment nearly killed me 4 years ago after I asked for help with developmental trauma, which is the number one health crisis in the world.

This so-called healthcare system is actually stacked against trauma survivors. It clings to the archaic and increasingly disproven biomedical model while it greatly ignores the MASSIVE developmental, psychosocial, and neurophysiological components of mental health.

If I end up at the hospital again I will again be deprived of my rights, strip-searched, abused, neglected, and drugged. I will receive no individual therapy, only mostly really crappy group therapy and even worse food, in a roach-infested building where the employer pressures the employees to abuse patients. This is widely known. BuzzFeed News did an investigative report about it years ago and it’s still happening.

Sometimes we just need someone to listen to us. If responders offered a listening ear instead of assuming they know what to do, they can significantly reduce the number of fatalities and jail time for individuals experiencing a mental health crisis.

Wilmington is Trauma City. As first responders, you are often exposed to potentially traumatic experiences. We need you to take care of your mental health and each others’. We need safe connection above all.

PLEASE: do everything you can to avoid sending us to the ER or the mental hospital. Neither of those places is equipped to actually help trauma survivors.

For more information, including about the Neurobiology of mental health, visit my public service website, TraumaAwareAmerica.org or follow my hashtag #TraumaAwareAmerica

Thank you for your consideration.

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Cuckoo’s Nest, Day 6

Stop Psychology Abuse

“Stop Psychology Abuse,” by Shay Seaborne, watercolor, mental hospital pencil

“Dr. Silman said they couldn’t release me tomorrow after all. That I had to stay a couple more days. WTF? She tried to tell me I’m not stable yet. I showed her the cover of my notebook and noted, ‘This is not the work of someone who is suicidal’

I asked about leaving and she said there were so many patients who want to leave and she has too much paperwork.

I told her the combination of sleep meds worked pretty well and asked if I’d have an Rx for those when I left. She said she wanted me to go off the Bis___ and take a higher dose of Trazadone, now 100 mg. That was her ploy for keeping me longer!

Ashley: ‘You could file a 72-hour form but that wouldn’t do you any good. Dr. Silman would feel more comfortable [the psychiatrist would ‘feel more comfortable? This isn’t about the psychiatrist’s feelings!] if you stay two more days.’ I was pissed!

‘That’s not a basis! I need a basis!’

About two hours later I saw Ashley and told her, ‘I decided to accept reality and make the best of the rest of my stay.’ She put on this Nurse Ratched voice, ‘That’s what we need to hear to let us know you are getting better and ready to leave.’

The group on ’emotional triggers’ was the worst ever. It’s like she was trying to trigger us! She didn’t keep the group on track, didn’t keep herself on track, talked as much or more as the participants, and talked about seeing gun violence and murders on social media. Noooo!” – Me, July 3, 2018, DAY 6 at the #UHS Cuckoo’s Nest called Rockford Center for Behavioral Health

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Cuckoo’s Nest, Day 4

“I told Dr. Silman the suicidal ideations were completely gone. She tried to convince me that the relief from suicidal ideations was not from being off the drug, but from ‘being in a supportive environment.’ I bit my tongue because I wanted to ask, ‘Really? Where?”’ But by then I knew the rules: toe the line, take the meds, go to group, be a good girl…
[After: I learned that the elimination half-life of escitalopram is about 27-33 hours. So, 30 hrs after a 10mg dose only 5 mg would remain in the body, and after 60 hrs only 2.5mg. This means that bitch doctor knew that I was right about the reason the ideations vanished and she chose to defend the meds anyway.]
Dr. Silman said she felt I still needed an antidepressant and she Rx Zoloft, another SSRI with suicidal ideations as a side effect. I would be vigilantly watching for any and raise a stink at the first one.
I asked dr. Silman about a treatment plan. She said ‘Your treatment plan is to meet with me, go to group, and take your meds.'” – Me, July 1, 2018, DAY 4 at Rockford Center for Behavioral Health Destruction, the Cuckoo’s Nest, AKA, “it ain’t about health and it ain’t about care”
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Cuckoo’s Nest, Day 1

“What am I doing here? I hate it so far. Noisy, institutional. No real comforts, shitty pillow, cold room, can’t see through the window. I don’t even have personal care items, like soap, shampoo, deodorant, toothbrush, and toothpaste.
So here I am, in a residential mental health facility. It feels awful, but I also, but also I hold out hope that I will finally get the help I have long needed. I guess we will see.
I got them to let me write a check to Janna for rent. I’m going to make a list of things to ask her to bring me in a paper bag, because, plastic bags are not allowed. Lots of things are not allowed. Too many.
They strip-searched me and then locked up everything but my clothes. At least I can keep my shoes, but no phone, purse, pen, or necklace. This pillow really sucks. I’m wearing an electronic bracelet, a beacon. It tracks where I am. Doors are locked electronically. Anytime we go somewhere like to dinner or the cafeteria, we are counted roll called and led to and from there is a lot of lining up here.
I’m supposed to talk with a dietician and a social worker tomorrow, my psychiatrist, too, I think.
Quote Of The Day: “Which would you rather sleep on, a rock or these mattresses?
Trick question. They are both equally terrible.”
Luckily, I have no roomie right now, I hope it stays that way. I’m not here to be social. I need my own space. Unfortunately, they make rounds and check on us every 15 minutes. This makes it hard to nap slash sleep. So I’m asking for a sleep med tonight. Also toothbrush toothpaste, deodorant, and disposable underwear. I called Yana, and she’ll bring some things for me. Probably tomorrow.
This place is so noisy. I can hardly get away from the TVs. One in each day room. I hate them. Maybe I’ll wear my ER earplugs when I’m awake after dinner. I went to the creative arts group. Helped find collage images for a calendar one of the therapists made for the teen group. It was okay.
I found a piece for the front of this journal. I think I’ll try to add something every day. I’ve had too much sensory input. I’m burned out still have the evening group thing and shower, etc.
I slept only two to three hours last night. I was up until after 4 am, which made 21 hours straight. No nap today. I tried. But they kept coming to check on me and made too much noise with the door. I really hope it isn’t a problem tonight. I hope tomorrow brings me the feeling of benefit from this experience. So so far, no. Yeah, this is in pencil because no, pens are allowed.
I realized how good I am at putting on a happy face, even from myself, not recognizing when I need help, especially when my shrink blows off my concern. He blew off my concern, like my parents and some bosses.
I don’t want to go back to Dr. Schwartz, he doesn’t get it and doesn’t listen. Doesn’t care enough to be my psychologist, too small for me! I’m done with him. NEXT!
Eight pm is “wrap up,” a group event. The counselor calls out our names and we’re to tell if we had a goal today, whether we met it, and how we feel on a scale of one to ten, some typical goals, call, my daughter talked to my doctor, stay focused, stay positive.
I said my goal was to survive the past 24 hours. I did it and I felt a 2 out of 10. About 18 people are here in the recovery unit. Quote from Viva: It’s okay to play the mental hospital card in a mental hospital.
Viva has been to a few mental hospitals, so she tells me what to expect. She said they can’t really help because they’re just a different face of the system but I can use them to my advantage. I’m not sure what that means.”
[My mental hospital journal, June 28, 2018, Day 2 in the Cuckoo’s Nest called Rockford Center for Behavioral Health, owned by Universal Health Services, America’s largest mental hospital chain, notorious for abusing and neglecting patients]
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Enter the Cuckoo’s Nest

Night in the Psych ED

Me, four years ago tonight, at the cusp of what would turn out to be a horrible turn of events: “I’m having serious problems with my SSRI medication and I need to talk to a doctor. Increasing suicidal ideations, wish to die, sleeping a lot, drowsy, trouble waking, memory lapse, spacing out, headaches, concentration lapse, couldn’t see something in front of me.”
Though I had complained twice about the increasingly intense suicidal ideations (SI) that began a few weeks after I started taking the Lexapro, the hospital system’s “embedded” psychiatrist had been unresponsive. So, I called my PCP, who had prescribed it. Unlike the psychologist, the young resident actually listened and recognized the danger those pills posed. My PCP firmly advised me to stop Lexapro immediately, never take it again, and go to a hospital ED for a psych evaluation ASAP.
I went to Wilmington Hospital ED where they took my clothes and personal belongings without notice. This included my phone, so I could not make even one call. That was highly distressing! Nobody explained what would happen, what to expect, and who would help me. Nobody did actually help me. Instead, they left me overnight in a cold room with nothing but a chair with a tray.
According to ED records, apparently my so-called “psych evaluation” was conducted by an MD. He asked about the SI, which did not involve any suicidal intent. Nonetheless, the doctor told me I had “a plan.” He said I should go to Rockford Center for Behavioral Health. Inpatient care would be helpful, a gateway to services, like art therapy and a psychiatrist on the outside. I said I was afraid. He asked what I thought it would be like. “Cuckoo’s Nest!” I said. He assured me it was not. (But it was!)
Sometime that night or early morning I was re-traumatized when Psych ED staff subdued and sedated another patient. They had escalated the situation instead of helping her regain composure. As they pinned her down she was screaming “Get off me! Get off me!” just like I did when pinned down by abusers. Of course, witnessing her trauma gave me a horrible flashback! I was crying and shaking in terror. Afterward, the subduers stood around just outside the door to my room, which extended my distress reaction. I felt trapped! Nobody bothered to check on me. It’s like I wasn’t even there. Later, I told a staffer how badly I was triggered and he looked at me like I was speaking gibberish. Staff response to my distress was absent.
This illustrates the pervasive lack of appropriate care/intervention and a systemic push toward unnecessary incarceration at Rockford, a facility owned by a company known to violate patient rights as it makes great profit by cutting staff and patient services.
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The Cuckoo’s Nest lives

Four years ago this month I was in a cuckoo’s nest!

I’ve been working on trauma recovery for over 20 years. Unfortunately, some of the worst damage to my nervous system occurred through the so-called “standard treatment” for PTSD when I asked for help with Developmental Trauma four years ago. The Black box medication gave me intense suicidal ideations, the psychologist ignored my complaints about this and downplayed what was going on with me.
The prescribing physician did not follow up with black box protocols to check on the patient’s condition, and when I sent her an email telling her this medicine was not good for me, she called to say go to the psych ER for “an evaluation.”
The next thing I knew I was stripped of my belongings and clothing, kept alone in a cold room overnight in a psych ER where patients were abused by staff.
The next day I was shipped off to the local cuckoo’s nest, #RockfordCenter for Behavioral Health here in Delaware. Rockford is owned by the notorious Universal Health Services #UHS, America’s largest mental hospital chain. UHS posts a 30% profit, double the industry standard, by cutting services and staff. Also, they force their employees to hoodwink and abuse patients.
At Rockford I was abused, my rights violated, fed a polypharmacy concoction that did nothing but make me feel yucky, and received no individual counseling. It was a hell hole.
I was unnecessarily kept in hospital for 8 days and nights due to an iatrogenic condition caused by the psychology – medical – pharmaceutical complex we call healthcare.
The harm was so great that, though I have been artistic most of my life, after I got out of that Cuckoo’s Nest I could not even hold a paintbrush! I had to go back to preschool and splash, smash, smear, and paint with my fingers. It’s like they nuked me back to the stone age.
After that, I consented to some surgery and woke up to find the surgeon had performed two additional procedures and removed healthy tissue from my body without consent. This was like another nuking back to the stone age. The resultant medical PTSD makes even routine office visits stressful. I can’t have the surgery I need to repair 7 in of hernia in a 14-in belly. This is greatly disabling. I can no longer sail, canoe, kayak, or lift things over 25 lb. Life as I knew it was destroyed.
Fortunately, I’ve studied the neurobiology of trauma for almost 8 years. Otherwise, I would be dead. Our so-called health care system has no recognition of the nervous system and the importance of its regulation as well as its involvement in what we call mental health conditions. Health conditions.
Two years ago I started my Trauma Aware America page to help inform providers and empower survivors. I want to share the good news of neuroplasticity and the field of Interpersonal Neurobiology, which shows us we can help ourselves and each other heal through kind relationships. Holding space, compassionate witnessing, empathy, verification of strengths, just being together in safety.
In January I started teaching this online. I partner with my friend and colleague, Imogen Ragone , a long-time Alexander Technique and BodyIntelligence instructor. We call our classes, “BodyIntelligence, Neurobiology, and Trauma.” The first four classes are on the foundations of nervous system regulation, and the second set shows how each participant can build their own healing framework based on neurobiologically sound principles combined with simple practices also backed by neuroscience.
For the past 4 years pretty much my whole life has been focused on recovery. It’d be nice if the medical system stops kicking me back down. I intend to “never stop talking it,” as the great Maya Angelou advised. The healthcare system in America ain’t about health and it ain’t about care.
I’m grateful I have learned about the neurobiology of trauma and can now articulate it so other people don’t have to study it for 8 years to understand the basics we need to help ourselves and each other heal. I know we are the healing wave. 🌊
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Can’t we just run away from our trauma?

Can’t we just ignore or run away from our trauma?

I tried! I quit my whole other life. Fledged my young adult children, sold and gave away my stuff, fixed up the house, sold it out a major loss, and went off to live my lifelong dream of sailing tall ships. 💕

It was fabulous for about two and a half years. I sailed over 7,000 MI aboard a of vessels large and small, and voyaged on the ocean for as long as 12 days. ⛵

But the trauma caught up with me. My symptoms became unmanageable. Shipboard life makes heavy physical demands and I could no longer handle the pain.

I decided to get a small apartment and sail part-time instead of live-aboard. I settled in Delaware to be near “me beautiful and magical ship,” KALMAR NYCKEL, a recreation of a 17th-century armed merchant vessel from Sweden.

My Delaware residency made me eligible for mental health insurance for the first time. I thought it meant I would finally have access to consistent help with recovery from severe Complex PTSD.

But the moment I walked into the facility operated by the mega-hospital I was sucked into a trauma machine! They put me on a Black Box medication, did not follow the recommended safety protocol, ignored my complaints that the Lexapro was giving me SI, and neglected to refer me to a provider who could offer the appropriate level of care.

Thanks to the “standard treatment,” which ignores the neurobiology of trauma in favor of supporting Big Pharma, in 5 weeks I went from being distressed to experiencing intense suicidal ideations. Delaware has no Before Stage 4 mechanism so I was funneled to the psych ER and from there to the Cuckoo’s Nest. I spent 8 medically unnecessary days and nights being warehoused, drugged, and retraumatized. 😡

Since then the so-called healthcare system has destroyed my health so much I can never crew aboard a tall ship again. So here I am, digging my way out by learning the neurobiology of trauma, applying it to build a healing framework for myself, and hoping to help others find their way more easily.

Yes, running away from our trauma can be wonderful! But it doesn’t resolve the trauma.
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Open letter to Delaware Division of Professional Regulation

A medical procedure begins with consent. Without consent, it is not medical treatment. It is abuse.

The state police said the licensing board determines whether the surgeon’s non-consensual cutting of my genitals was a crime or medicine. A medical procedure begins with consent. Without consent, it is not medical treatment. It is abuse. Cutting a person without consent is assault. Cutting a person’s genitals without consent is genital mutilation. 

Surgical violation of my genitals compounds the impact of the sex abuse I endured as a child. The surgeon knew I was particularly vulnerable and purposely exploited that. A real doctor would be extra careful and kind with a patient like me. A caring doctor would have made choices to support my health and well-being. The surgeon premeditatively chose the opposite. He intended to cause harm, and he did nearly destroy me. I struggled to keep going, but I knew in my bones he was a serial offender and I could prove it if I could only lay it out with great clarity. 

My complaint document is the culmination of almost 3 years of effort. Each time I felt overwhelmed by grief or rage I took one tiny step toward reporting him. I looked up an agency and saved the address one day, read a bit of state law the next, and wrote a paragraph on yet another. I also searched for articles, asked advisors for support and feedback, and parsed my records and interactions with the surgeon and staff. In addition, I spoke about the trauma of the non-consensual surgery with every provider I visited. Each of them expressed that it should not have happened. 

An ethical medical professional highly values consent. They would never degrade a patient who had an issue with lack of consent. The surgeon showed contempt for my agency and my concerns. Contempt is the antithesis of medicine. 

The surgeon’s contemptuous act executed unwanted permanent changes to the most intimate part of my body. This has deeply affected all areas of my life. Due to the Medical PTSD sparked by the surgeon’s massive betrayal, I cannot undergo necessary major surgery and may never be able to. My activities are greatly restricted and my physical capacities are significantly reduced. I am in near-constant pain and frequently feel disturbing sensations in my core. I experience chronic distress. To regain my previous way of life is impossible. I must live with the heavy negative effects for the rest of my days. 

If anyone on the board believes what the surgeon did to me, and however many other women, is okay, that this is medicine, then God save their soul. 

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